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Jason WilsonOur Board

Chair - Heidi Wilson

Secretary - Laura McLeod

Treasurer - Jason Wilson

All the Trustees are volunteers and unpaid for the work they do.


Heidi Wilson

Heidi is the Founder and Chair of the Foundation and was diagnosed with IIH in 1989. She has a VP shunt and has had bilateral Subtemporal Decompression surgery. She has had many surgical procedures and complications which are now resolved, which she says is "Thanks to her Neurosurgeon and his dedicated team"
Heidi trained to be a Secretary after leaving school, and also has Business Administration qualifications as well as a qualification in Patient Services.

She worked for the NHS as a Patient Administrator, and later as a Data Manager for The Trent Hep C Study group, until her retirement in 2007 due to ill health. She feels that her extensive background as both a patient and hospital employee, gives her the experience and empathy necessary, to give the best support, practical advice and help to other sufferers of IIH.


Laura McLeod

Laura is the Foundation's Secretary and has grown up with a parent who has IIH and gone through the many, surgical procedures and complications. Her insight from a child's point of view is a great source for children of parents with IIH, and to the parents who have IIH.



 Jason Wilson

 Jason Wilson is the Treasurer and is the husband of Heidi Wilson. He has supported Heidid through her many surgeries and     treatment for IIH for over 20 years. He knows firsthand the difficulties faced by couples and families living with IIH. He has       helped  to raise money for the charity for several years, and helped to raise awareness for IIH. Just like Heidi and Laura, Jason   believes there is a need for an IIH  grant giving charity, after experiencing some of the financial strains caused by this disease. 

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