Your browser version is outdated. We recommend that you update your browser to the latest version.

Our Board

Chair - Heidi Wilson

Secretary - Laura McLeod

Communications Officer - Ann Hartley

Treasurer - Daniel Hart

Trustee - Shanice Stocks-Adair

All the Trustees are volunteers and unpaid for the work they do.


Heidi Wilson

Heidi is the Founder and Chair of the Foundation and was diagnosed with IIH in 1989. She has a VP shunt and has had bilateral Subtemporal Decompression surgery. She has had many surgical procedures and complications which are now resolved, which she says is "Thanks to her Neurosurgeon and his dedicated team"
Heidi trained to be a Secretary after leaving school, and also has Business Administration qualifications as well as a qualification in Patient Services.

She worked for the NHS as a Patient Administrator, and later as a Data Manager for The Trent Hep C Study group, until her retirement in 2007 due to ill health. She feels that her extensive background as both a patient and hospital employee, gives her the experience and empathy necessary, to give the best support, practical advice and help to other sufferers of IIH.


Laura McLeod

Laura is the Foundation's Secretary and has grown up with a parent who has IIH and gone through the many, surgical procedures and complications. Her insight from a child's point of view is a great source for children of parents with IIH, and to the parents who have IIH.



Ann Hartley

Ann is the Foundations Acting Treasurer/Communications Officer. Diagnosed with IIH, Ann feels fortunate to have a headache-free version of the condition. 

Ann works full time, working with clients in both the Private and Public Sector. Used to working with Senior Management, and planning large scale projects, Ann has the experience to support the work of the Foundation in approaching partner organisations, and Medical Professionals, to ensure that our information and support reaches as many people as possible.

Share on Social Media

Cookie Policy

This site uses cookies to store information on your computer.

Do you accept?