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Our Mission

To empower sufferers of IIH with a better knowledge and understanding of their condition, so they can adapt to life with IIH and be more productive. To provide information, support material, forums, advocacy and with adequate funds, provide grants when financial help is needed. To help IIH sufferers come to terms with their diagnosis and treatment in a positive way. Provide support, financial assistance and practical advice. Advance the general public’s awareness of Idiopathic Intracranial Hypertension.

We Know:
The impact IIH has on families
The suffering and pain caused by the symptoms and treatments
The life-changing affects that IIH brings to mind, body and spirit
What it’s really like to live with IIH
The impact on social and working life
The financial toll it takes because of time off work or loss of work

Our Objectives
Promote social inclusion for sufferers of IIH. No one should suffer in silence or feel isolated.
Provide support to help sufferers cope with living with IIH and to help build self-confidence and wellbeing
Work to have Idiopathic Intracranial Hypertension recognised in the workplace, general public and education environments
Provide literature to sufferers and the public about IIH and promote awareness
Provide financial aid in the way of grant giving to help with financial difficulties and short convalescence breaks

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