Your browser version is outdated. We recommend that you update your browser to the latest version.

For Carers

You may find yourself in the position of being a carer for someone who has severe IIH, and may not know what help or support is available to you. You could be the person who has IIH, and it is one of your children that is your carer, and you are looking for help and support for them. There are are organisations that can help by connecting you with other people in the same situation, and can also give practical help or just listen.

Carers Trust - Crossroads Care and the Princess Royal Trust for Carers have merged to become the Carers Trust, making a significant impact on Carers by strengthening their support and resources for Carers in the UK. To find out more visit
NHS Choices guide to social care. It has information on all the topics related to caring for a loved one with an illness or disability.
Young Carers Project - The project offers services, support and information to young carers in Dundee aged 5-18 years. The Upbeat project works with young adult carers aged 15-30.
Barnardo's Young Carers - Barnardo’s runs 15 services across the UK which work to support young carers and their families in a variety of ways 

Caitlin's Wish -  Caitlin’s Wish is a fairy story with a twist. Based on the reality of a family learning to live with IIH, this story helps children to focus on the positives in life. It follows the lives of Caitlin and Chris who become young carers in a very short space of time. Since it was first published this book has helped countless families to see life from each other’s perspective and start discussing their own situations. It’s also been used in young carer’s awareness talks, and it’s been used in schools to raise awareness of young carers issues. It’s available through Troubador publishers. 

Love is all we need - Carers Booklet - This booklet was written to help those caring for a family member who has severe symptoms of IIH. ©2015 V.A.Lewin Permission granted to us by the author. (Not to be used on any other website or media without the authors permission).

Counselling Directory is a confidential service that encourages those in distress to seek help. The directory contains information on many different types of distress, as well as articles, news, and events


Share on Social Media

Cookie Policy

This site uses cookies to store information on your computer.

Do you accept?