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Support Forums

What can you expect from the I Have IIH Foundation Support Forum?

We offer you constructive advice based on experience and success. Our aim is to help you to achieve a more positive and productive life with this condition. We don't put a time limit on your membership, and actively encourage you to keep coming back, just to let us know how you've been getting on, as well as to share your support, coping strategies and friendship with other members.

Sharing your experiences, the highs and the lows, especially when your treatment has been a success, can have an important and positive impact on others who are living with IIH. 

Your stories combined make you kindred spirits. By definition a "Kindred Spirit" is someone who "thinks and feels the same way as another person". Having a condition such as IIH can make you feel isolated and misunderstood, but not here. Here you can connect to people who know how you feel and what you're going through.

Why are the support forums on a different website?

We started our support forums first as a group, which then evolved to our charity. Rather than lose all the valuable, important posts and information that members have contributed, we decided to keep the support forum as it is and link to it this way and to also prevent any disruption to our members.

Join the I Have IIH Foundation Support Forum

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