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Volunteer with us

As a volunteer you can make a meaningful contribution to the IIH community. We would love to have volunteers of all levels, from inexperienced to professional, in every corner of the UK.

Could you be an Advocate? We need dedicated  people to help us go into work places, schools, colleges and universities to advocate for people with IIH. Could you give talks and answer questions about IIH and what it is like for someone living with it?

If you think you could, believe in inclusion and fair rights for IIH, are passionate about helping and making a difference. then please email us below. Nothing can change without a change in attitude. We don't want to just talk about it, we want to fo it!  It's not just about the medical side of  IIH, it's about the emotional, physical, financial and social sides. It affects home life, employment and socialising. It isolates and it causes depression and anxiety.

Please help us to help in these situations. TOGETHER it will make a change.

If you want to help  please join us. Complete the Volunteer Application to become a member:

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